Tag Archives: uganda

Participatory Storytelling at Alive Medical Services

Alive Medical Services is launching a new participatory storytelling project to break down stigma and open up conversation around HIV: Positive. Powerful. Alive.

By engaging clients this project, we will provide program participants with a platform to tell their stories from a lens of strength. Through storytelling, video, and photography, clients will show their communities that they aren’t victims – they’re fighters. And they have stories to tell.

We have secured a partnership with a local video company, SkyRock Productions, that has agreed to train our clients on storytelling, video, and photography. However, we still need simple photo or video devices our clients can film their stories with.

That being said, we are looking for partners equally as interested in the power of arts, storytelling, and the end of HIV-related stigma to make this project a reality.

Our clients’ narratives will help reshape the way HIV is viewed in Namuwongo, Kampala, and beyond. Please consider donating to this project at https://goo.gl/8X1syD.

If you are interested in being involved in this project, reach out to Alive Medical Services’ communications department at emiolene@amsuganda.org.

Children’s Day at Alive Medical Services

On December 2, 2017, 100 children gathered at Alive Medical Services for Children’s Day.

“Even though they’re children, they still experience stress,” said Lorna, a counselor with AMS’ youth and children program. “Children’s Day gives them a chance to be free and have fun together. They can forget their troubles for a little while.”

Throughout the day, youth peer educators led children in a number of different activities. They sang, danced, and played games, sometimes with their caregivers, other times with their peers.

The youth educators talked to children about the importance of adhering to their medication, along with other child-friendly health topics.

“Our youth educators really take charge of these events,” Lorna said. “They serve as good role models for the children, and encourage them to stay healthy.”

As children interacted with youth educators and staff, their caregivers participated in their own type of programming: music therapy. Our music therapy program was recently relaunched by two new members of our staff, both of whom arrived two weeks ago from the United Kingdom. These two staff members, Ella and Isabel, engaged caregivers in music therapy sessions throughout the day.

While in these sessions, caregivers were given the chance to unwind, share stories, and enjoy each other’s company. They talked about motherhood, care, and HIV, connecting over the challenges (and of course, the benefits) of raising HIV-positive children.

“A great part of today is the fact that children get to share love with their parents,” said Martin, a clinician at AMS. “We encourage children to dance, sing and spend time together, which is so important.”

 

“I will not die before you do” Peace’s Story of Survival

Peace’s mother sold her and smiled.

“You don’t belong to anyone,” she said, looking down at the girl as she was forced to take off her clothes. Peace wrapped a red piece of cloth around her waist, not understanding where her mother was going, or why she had taken her here. Children peered out at her from behind the legs of adults, fear etched into every one of their faces.

“You’re going to die here,” her mother said.

Peace was just 7 years old. But in her head, she silently spoke her response.

Trust me, Mommy, she said. I will not die before you do. 

Childhood

This woman was not Peace’s mother. But when she first found Peace sleeping on the streets of Rakai, that’s exactly who she said she was. The woman cleaned Peace up, fed her dinner, and made her feel comfortable in her home, a large house far from the village 5-year-old Peace had initially fled.

“From this day forward, I am your mother,” the woman said. “You don’t have to worry anymore.”

Peace never knew her biological mother, but her last adopted family had forced her to sleep on the cold, hard ground outside their house. Peace’s new mother sent her to boarding school.

Though Peace was thrilled to go to school, she was anxious to see her mother again. She hadn’t been feeling well, and she was worried it was related to the fact that she wasn’t taking her medication anymore. Peace didn’t know what the medicine was for, but for as long as she could remember, the medicine had made her feel better. At her last home, Peace had been forced to clean the house, wash clothes, and scavenge for food — but she did swallow pills every day.

The holidays grew nearer, and returning home consumed the young girl’s thoughts.

“As time went on, I found out that my mother tried to pay the teachers to keep me at school,” Peace said. “But they kept telling her: you need to pick up your girl. Finally, she did.”

Back in Rakai, Peace’s reunion with her mother was short-lived. The woman left her with some food and water, and told Peace she’d be back in a week. When the woman’s husband found Peace at the house unaccompanied, he threw her out of the house, threatening to kill her when Peace tried to explain that the woman — his wife — was her mother.

Peace had no choice but to go back to the streets. For weeks, she shuffled from empty building to empty building to find somewhere to live, doing everything she could to get enough food to survive. Despite the last encounter she had with the woman’s husband, she felt like she had no choice. She went back to the large house  to ask for help.

Once she got there, Peace collapsed into the woman’s arms. Her husband wasn’t home, but he would be returning, she said. The woman dried Peace’s tears and held her close.

“Don’t cry,” the woman said. “I’m taking you to live with my sister.”

The woman brought Peace into a forest, claiming her sister had a large house of her own just a short distance away. The woman forced Peace to walk for hours, pressing her to continue until they finally reached a clearing in the woods.

The area was filled with dilapidated thatched huts. Peace had no idea where she was, or more alarming, why a wealthy woman’s sister would live in the depths of the forest. Her questions wouldn’t be answered until days later, when another young girl dressed in crimson explained where they were — and what they were doing there.

Before long, the woman was walking toward home with a money-filled envelope.

Peace was walking toward death in a child sacrifice camp.

Transitions

Today, Peace is 18 years old. Peace is a survivor — not only of poverty, violence, homelessness, and attempted murder, but also, of HIV.

After three months of trauma, Peace escaped the child sacrifice camp and boarded a taxi to Kampala. Weak and undernourished, she was soon back on the streets. She was rounded up with a group of other street children and sent to live in a police cell. When no one came to pick her up, Peace spent three years in a children’s prison.

Every day that passed, Peace’s health deteriorated more. Peace hadn’t committed a crime, but she also didn’t have a home. Without anyone to care for her, she remained in prison until she was adopted once more at the age of 11.

By that time, Peace had been without her medication (which, she later found out, was HIV treatment) for more than six years.

“The doctors thought I had brain damage because I was so sick,” Peace said. “I was finally adopted into a real, kind family, and my mother brought me to see Dr. Pasquine.”

AMS doctors tested Peace for HIV. When she tested positive, they started her on antiretroviral treatment. Thought her parents told Peace that the medicine would keep her healthy and strong, she didn’t realize she was HIV positive until her parents disclosed to her at the age of 13.

“I was terrified,” Peace said. “I had already gone through so many things. You wouldn’t even know I could speak because I was so quiet, I refused to talk.”

Peace became unconsolable. Unwilling to accept her diagnose, she stopped taking her medication. Peace’s parents brought her back to AMS for counseling, and while she was there, the staff introduced Peace to the Victor’s Club, AMS’ program and peer support group for youth living with HIV.

After interacting with doctors, counselors, and her HIV-positive peers, Peace realized her life was far from over. She kept returning to AMS for Victor’s Club meetings and treatment, and slowly, she began to open up. She started talking not only about her past memories, but her future fears.

Finally, Peace said, she had found a place where she could just be herself.

Today

“I never had friends before Victor’s Club,” Peace said. “Once I started coming, things really changed. Now, I’m so social — everyone here knows me.”

Today, Peace counsels younger children involved in Victor’s Club and organizes meetings for her peers. She feels stigma free, she said, and openly shows her medication to anyone who asks about it.

Though Peace’s family has moved to Entebbe, she continues to come to AMS for Victor’s Club meetings, treatment and medication, and other AMS initiatives, such as last year’s music therapy program. Over the summer, Peace was trained at AMS to become a youth peer educator. At this training, she acquired the skills to help HIV positive children and adolescents in her community, and has since helped a number of HIV positive youth in Entebbe find clinics close to their home.

“I love being involved because I am one of them,” Peace said, speaking about the other HIV positive youth in the Victor’s Club. “I used to be like them, refusing to take the drugs. Now, I am healthy. I can help them.”

Peace is now studying counseling at her university. After graduation, she wants to become a minister, spreading messages of love, health , and hope not just in Uganda, but around the world.

“Having HIV is not my fault,” Peace said. “There’s nothing to be done about it. You have to accept the life you were given, and move on.”

Mark Your Calendars: Next Week is #GivingTuesday!

One week from today, people around the world will celebrate #GivingTuesday. First launched in 2012, #GivingTuesday was created to kick off the charitable giving season, boosting the impact of organizations and connecting individuals with causes they care about.

To wrap up 2017 in the most impactful way possible, Alive Medical Services has teamed up with Global Giving to raise funds for our most vulnerable clients: HIV positive women, adolescent girls, and children. We’ve created this new project page to strengthen our  programming for women and children, boosting our support for those most disproportionately affected by the HIV epidemic in Uganda.

From 12:01 a.m. to 11:59 p.m. on November 28, 2017, every gift you give toward Alive Medical Services will help us unlock matching funds through Global Giving!

In addition, Global Giving will match every recurring donation made from November 28 to December 31 by 100%, amplifying your impact for HIV positive women, girls and children at AMS.

Every time we work together, we get closer to an AIDS-free Uganda. We are so excited for #GivingTuesday, and we hope you are too!

Stay tuned for updates by following us on Facebook, Twitter and Instagram, and by signing up for our newsletter!

Peer Educators Come Together for the Last Training of 2017

A peer educator offers a potential solution to a challenge another has voiced.

On Friday, November 17, over 100 peer educators attended a capacity building session at Alive Medical Services (AMS).

Every quarter, peer educators attend these half-day events, which aim to track progress, dissect challenges, and set goals for the future. Once a client becomes a peer educator, they are charged with referring and visiting eight potential or current clients per month, increasing their communities’ access to free HIV testing and care.

“My husband died because of AIDS, and I never knew,” said Eva, a peer educator. “I always felt like if I had known – if he had told me – we could have avoided his death. I became a peer educator because of that, and to show others that being HIV positive doesn’t mean life can’t go on.”

From 8 a.m. to 1 p.m., AMS staff engaged the peer educators in several different sessions. To evaluate the impact of their home visits and referrals, monitoring and evaluation officials went over the groups’ recorded progress. In addition, peer educators voiced the challenges they were facing in their work, sparking conversation about recent successes and setbacks.

One of the challenges highlighted by peer educators was the fact that oftentimes, members of their communities will ask the peer educators to accompany them to the clinic on their first visit. Such accompaniment makes it easier for new clients to locate AMS and feel more comfortable in a new setting – but sometimes, this is not financially feasible for the peer educators.

After discussing the issue and the frequency of such requests, the peer educators came to two solutions: the first, writing out clear directions and detailed instructions of where to go and what to expect when locating the clinic; and the second, to reach out to AMS for transport reimbursement if accompaniment is essential to getting a community member to the clinic.

“Peer educators are instrumental to the comprehensive health care we provide at AMS,” said Geoffrey Nsabimana, a clinical officer at AMS. “These trainings increase peer educators’ skills, and because of that, help them bring in more clients.”

Many of those who attended the training have been peer educators since the program’s launch in 2014. Their experiences – along with their continued attendance at trainings like this one – provided insight for new peer educators, helping the latter navigate their roles and learn how to deal with unexpected challenges.

“AMS is always growing,” said Olivia, a community health worker at AMS. “The capacity building trainings help peer educators manage increased client loads. They also give peer educators a chance to encourage and support each other.”

Later, AMS doctors led a session on the differentiated service delivery model (DSDM). Though this model has been in place at AMS for several years, the clinic is currently looking for ways to strengthen its implementation. By engaging peer educators in this process, AMS will be able to provide DSDM not only at a clinic level, but on a community level too.

“I’ve been a client at AMS since 2007, and I’ve always been treated well,” said Samuel, another peer educator. “I became a peer educator to spread the news about AMS. People in my community don’t realize they provide free services, but I know that if we keep talking, we can reduce the number of people who are getting HIV.”

The next peer educator capacity building training will take place next quarter. In the meantime, the group will go about their monthly duties, expanding AMS’ reach and continuing to educate their communities on HIV/AIDS.

“Peer educators help us to help others,” Olivia said. “Reaching clients is not something we can do alone.”

Irene and Mable pose for a photo at AMS’ peer educator capacity building training. Both women first became peer educators in 2015. “We became peer educators because we wanted to set an example for others,” Mable said. “There are so many HIV positive people in our communities that are not getting treatment because they fear the stigma. We want to help them.”

Meet Janipher, an Administrative Assistant at AMS

For many, getting tested for HIV can seem like an impossible experience. There’s the fear of diagnosis, of course, but also the fear of being seen: if you’re spotted at an HIV clinic, you could be associated with a virus stigmatized by most of the world.

Such perceptions shape the course of Janipher’s days. Often, she is the first person a client sees upon entering Alive Medical Services (AMS). As part of the front desk department, Janipher works with three other colleagues to receive hundreds of people every day. The team helps clients feel comfortable and cared for throughout their time at the clinic, decreasing waiting time and delays.

“I work with clients of all different characters, colors and classes,” Janipher said. “My job is to show everyone they are welcome no matter who they are, and to help them get the care they need.”

Such inclusiveness is important to Janipher. When she was just a young girl, her father passed away unexpectedly, leaving Janipher and her six siblings without a home. His land was seized and sold, but finally, Janipher’s aunt took her in as the 14th child in her family.

With a family so large, it was only through hard work that Janipher was able to make it through school.

“Life wasn’t easy, but I worked hard,” Janipher said. “I was one of the best students at my university. Because of that, they paid for half of my tuition.”

For the past three years, Janipher has worked as an administrative assistant at AMS. She has overcome the struggles from her childhood — but they have also helped Janipher empathize with patients when they are going through a difficult time.

Monday through Saturday, Janipher receives clients, updates patient information, and keeps records. She also enrolls new clients into the system if they test positive for HIV.

“Every client passes through our hands,” Janipher said. “We monitor every step of their visit to the clinic, and make sure things are running smoothly.”

Since she began working at AMS in 2014, Janipher has watched the clinic’s client load rapidly expand in size: today, the front desk team attends to an average of 170 to 250 clients each day. By greeting each one of those clients with warmth, Janipher helps patients feel at ease at AMS, facilitating their return in the future.

“When clients first come in, they often seem hopeless,” Janipher said. “Our department smiles so we can keep them optimistic.”

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