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My Journey with Alive Medical Services

By Francis Musasizi

I was born into a family of three children: my sister, the oldest, and my brother, next in line. I was the last to be born, and we were all raised by our mother, a single parent.

I’ve been living with this epidemic since the day I was born. For the past 21 years, I’ve experienced real ups and downs because of HIV. For years, I had no idea I was HIV-positive: my mom had not disclosed to me, fearing that the status would worry me. All the same, I remember taking one tablet at 6 a.m. every day – and because I was thin, I faced all kinds of bullies at school.

As the years went by, my mom and I were introduced to Alive Medical Services. I met a loving lady named Dr Pasquine, the director of AMS, who welcomed me into the clinic with all her heart. I was then introduced to Lorna, the head of the Youth Wing.

Since then, Lorna has played a big role in my life; she introduced me to a group of youths who were like me. The youths were a part of the Victor’s Club, AMS’ group for HIV-positive youth. We would chill together, have fun, and entertain ourselves. Finally, I knew I was in a safe place, and AMS became my second home.

By that time, my mom still hadn’t disclosed to me. I was in that curiosity stage of life, where I would ask my mom a series of questions.

“Why am I taking this pill every day?” I would ask. Eventually, she told me the truth, and explained how important that pill was to my life.

When she told me I was HIV-positive, I was shocked. I wondered how I would keep swallowing this pill, every single day, for the rest of my life. With the help of my fellow youths at AMS – and the awesome counsellors who had my back – I realized it was possible.

Even so, returning to school after discovering my status was difficult. I was terrified of how others would think of me. At times, I would skip my medicines. And sometimes, I would go through moments when I started to give up the fight. I became quiet at school, as I didn’t want to share anything with my peers; I started viewing my status as an impediment to my academic performance. However, every time I would feel down, I would call one of the counsellors at AMS.

A few years later, a community music leadership training program came to AMS. The program was launched in partnership with Musicians Without Borders (MwB), the goal of which was to use music to fight stigma. Along with 28 other youth, I went through a series of training at the clinic with MwB. At the end of the program, we were awarded certificates and became community music leaders.

Our newfound knowledge enabled us to provide music training during youth days, children’s days, and additional days during the week, something I’ve been involved with ever since. We would gather with children and lead music sessions, so by the time the client saw a doctor, they would have participated in our session. These sessions had a big impact on clients’ health, as many of their viral loads became suppressed after participating.

After the community music leadership training program, I started believing in myself. I knew I had nothing to change regarding my status, so I embraced it. I accomplished this with the help of my fellow youths at AMS, who always visited and backed me up when I felt down.

My message to all the youths and adolescents living with HIV out there is not to give up on your dreams. We also have bigger dreams to chase, just like any HIV negative person, and we shouldn’t lose hope. We can make it to the stars and beyond if we adhere to our prescriptions and exercise positive living.

1-year-old Charity is HIV negative!

On January 30, 2018, Catherine’s second-born daughter was confirmed HIV negative.

A clinician smiled as she brought Catherine into the treatment room, embracing her to celebrate the good news. Ever since she realized she was pregnant, Catherine had worked hard to ensure the baby, Charity, wouldn’t contract HIV. She received continuous support from AMS staff to prevent mother-to-child-transmission of the virus, and faithfully adhered to her medication.

“I’m so relieved,” Catherine said. Charity smiled in her arms, almost as if she was relieved, too.

The joy in the room was tangible. But it hadn’t always been this way for Catherine and her family.

When Catherine gave birth to her first-born daughter, she went to live with her mother and extended family in the village. As Catherine recovered from the delivery, her family helped her with the baby. Her husband stayed in Kampala to work – and during that time, he contracted HIV from another woman.

Catherine returned to Kampala after three months in the village, unaware of her husband’s infidelity or illness. She put all her time and energy into caring for her daughter. And when the two of them fell sick, she assumed it was a temporary bug, or at worst, malaria.

Catherine tested HIV positive at a health facility near her home. Her neighbour urged her to get another test at Alive Medical Services – and after her diagnosis was confirmed, the doctors tested Catherine’s daughter, who was also diagnosed HIV positive.

“I was shocked, but there was nothing to be done except to begin treating myself and my daughter,” Catherine said. “I convinced my husband to get tested, but he never accepted his diagnosis. For me, the only option was to stay strong for my child.”

Catherine has since separated from her husband, who refused to get treatment and was inhibiting Catherine’s own progress. By continuing to visit AMS for check-ups, Catherine’s viral load is suppressed, and her first-born daughter – now three years old – is stable and healthy. Catherine now works as a farmer in her village, where she grows fresh produce for her family and sells whatever is left.

“My advice to other HIV-positive single mothers is to do as much as possible to support your children,” Catherine said.

Peer-to-Peer Adherence Counselling Workshop Brings Clients Together

On Saturday, January 20, approximately 100 clients came together for a peer-to-peer adherence counselling workshop at Alive Medical Services.

The event provided a platform for HIV positive clients to come together, discuss adherence and viral load suppression, and link to existing psychosocial and income-generating groups at AMS. Many participants signed up for AMS’ Peer Network Group, all of whom will be encouraged to meet quarterly to engage with one another, socialize, and provide peer support.

AMS will synchronize participants’ appointment dates, helping to facilitate Peer Network Group meetings and reduce travel costs for clients. In addition, AMS is creating focus groups focused on psychosocial, economic, and developmental growth, allowing clients to discuss more specific topics with their peers in the future.

“The event created a safe space for clients to connect and network,” said Beatrice Mujuni, a member of the workshop coordination team. “It was a great turnout.”

Throughout the day, clients were given space to introduce themselves, interact with one another, and participate in a number of different activities, including a group music therapy session. They also engaged in focus group discussions on adherence and viral load suppression.

Highlights of the event included a speech from Dr. Stephen Watiti, a renowned doctor and HIV/AIDS activist, and a performance by the Canaan Gents, a Kampala-based acapella group. Dr. Watiti spoke to clients about his own experiences fighting not only HIV, but cancer, tuberculosis, and meningitis.

As the first doctor in Uganda to go public about his HIV status, Dr. Watiti was able to deeply connect with the clients; he even gave out his phone number to the group, encouraging clients to reach out to him with health concerns.

The event culminated in voluntary medical consultations for interested clients.

 

 

 

Meet George, Head of Nutrition at Alive Medical Services

Growing up, George knew he wanted to be a doctor. He was good at math and biology, and he idolized his uncle, a well-known doctor in his Lira community.

“My uncle had a passion for his patients, and I respected that,” George said. “I wanted to learn to do what he did – so I studied clinical medicine, community health and public health.”

After finishing his studies, George got a job with Medicines Sans Frontiers (MSF) in Northern Uganda. He was stationed in Lira and Kitgum, where he worked with children in two therapeutic feeding centres that served as referral points for health facilities throughout the region. He had studied malnutrition and its effects at university, but seeing such issues in person changed the course of George’s life.

After two years with MSF, George moved to Kampala to continue his studies at the International Health Sciences University. Right down the road, Alive Medical Services (AMS) was growing at a rapid pace. Though only in existence for three years, word about the small clinic was spreading.

“One thing I noticed immediately was the teamwork,” said George, speaking of his impressions after first visiting AMS. “Seven years later, that teamwork is one of the major reasons I continue to work hard today.”

Eventually, a spot opened up at AMS. George took it, and immediately, he began noticing an all-too-common trend, something he had seen regularly in the refugee camps in the north. Many of his HIV positive clients were malnourished, running the risk of never getting better due to lack of food.

“Good nutrition and antiretroviral treatment reinforce each other,” George said. “When a client is taking ARVs but not eating well, they’ll never get better.”

George took it upon himself to expand AMS’ nutrition programming. Every quarter, AMS now screens more than 5,000 clients for malnutrition. Twice a month, we provide packages of rice, beans, sugar and vegetables to thousands of families in food crisis.

In 2014, George took over AMS’ budding gardening program, which trains HIV positive clients to grow healthy food in their own neighbourhoods. George began training multiple groups of clients from across Central Uganda, including patients in Kampala, Mukono, Kapeeka and beyond. Today, there are 18 established gardening groups of AMS clients, all of whom cultivate produce for subsistence and sale.

To strengthen his knowledge of nutrition even further, recently, George went back to school to receive a master’s degree in human nutrition. He has continued to work full-time at AMS, helping clients better understand the value of nutrition through counselling, nutrition check-ups, and health talks.

“Nutrition is critical for people managing HIV,” George said. “We can’t leave it behind.”

There’s still time to support women and children affected by HIV!

 


Donate to Alive Medical Services by tomorrow, December 31, before 3:59 p.m. Uganda time (and 11:59 p.m. EST) to increase your impact for women and children affected by HIV.

To finish off 2017 in the most impactful way possible, Alive Medical Serves launched an end of year fundraising campaign at the end of November, Stop the Cycle of HIV: Support Women and Children. Our online fundraising partner, GlobalGiving, has provided so many different opportunities for our supports’ donations to be amplified through the holiday season.*

We’re so close to reaching our goal – but we’re not there yet! We still need your help to support all the infants, children, youth, women, mothers, and grandmothers currently in our care.

Thank you so much for your support this holiday season. Our work would never be possible without your generosity and compassion!

* all donations made on our GlobalGiving project page are tax deductible for U.S. donors. And, U.K donors can claim Gift Aid when they donate in GBP!

 

Fathers, Daughters, and Denial Turned Activism

Hassan found out he was HIV positive in 2010. He and his wife had long split up – but when he found out she had passed away, Hassan had a feeling he knew why.

“My brother is a doctor in California,” Hassan said. “He tested me for HIV years before, but didn’t tell me the truth because he was scared of my reaction. Deep down, I knew what he couldn’t tell me.”

Eventually, Hassan visited Alive Medical Services to be tested and treated for HIV. At first, the medication made him dizzy, weak, and drowsy – but after speaking with the doctors, he was switched to the same antiretrovirals he has been on ever since.

“When I first found out I had HIV, I was heartbroken,” Hassan said. “I was in denial until I went through intensive counselling at AMS. They helped me work through what I was feeling.”

Because he hadn’t felt symptoms until a few months before his diagnosis, Hassan had no idea the virus had also touched his daughter. She was just 12 years old at the time she was tested, and at such a young age, Hassan was unsure how to tell her the truth.

The two developed an unspoken routine: Hassan and his daughter would take their medication together in the morning. It wasn’t until Hassan’s daughter saw another student at school taking the same medication that she started asking questions.

Understanding the value of proper disclosure, Hassan sought support from the AMS counseling department. He sat his daughter down to tell her the truth, finally revealing the secret he’d been keeping for two years.

“Will we die?” Hassan’s daughter asked.

“No,” Hassan answered. “If we keep taking our medication, we will live long, healthy lives.”

Today, Hassan’s daughter is an activist in her community. She takes after her father, who is outspoken about HIV, stigma, and the availability of free HIV resources both in person and online. By speaking out about HIV at school, Hassan’s daughter has mentored a number of HIV-positive children, helping them adhere to their medication and stay optimistic about their futures.

“She’s strong and vigilant,” Hassan said. “I couldn’t be prouder of who she has become.”